Our Events

As a patient advocacy organization dedicated to a rare condition, our community, is spread accross the globe. As such, many of our gatherings, events and support groups are held virtually or in specific cities where a community member has a network of support.

Families from across the globe have organized blood drives, running, walking and biking events, golf, bowling, and washer tournaments, chili cook-offs and food tasting galas. These events have allowed families to promote community awareness, remember a lost loved one, meet other affected families, and contribute to meaningful programs and research initiatives.

Our community is strong, resilient, creative, and motivated to #endAFE. Check out our calendar of events and support offerings below. If you are interested in creating a fundraising or awarness event or need help getting started, we’d love to help! Contact our Community Liaison, Katy Imbrogno katy@afesupport.org, to set up a call. 

Event Series Grieving Moms

Grieving Moms

Specifically, those who have lost an adult daughter to an AFE, this monthly small group will connect you with others who share a very similar grief. Groups are facilitated by an LCSW and birth trauma expert.

Event Series Survivors 1-5 years

Survivors 1-5 years

Specifically for AFE Survivors, this monthly small group will connect you with others who share similar experiences, emotions and challenges. Groups are facilitated by an LCSW and birth trauma expert.

Help us #endAFE!

The AFE Foundation is entirely funded by donations. Every dollar goes directly toward our support, research, and education programs. We are committed to turning donations into action, including yours.