About AFE Foundation
The Amniotic Fluid Embolism Foundation, a non-profit organization, was established in 2008 to reduce maternal and infant mortality attributed to amniotic fluid embolism while helping those impacted navigate paths forward. We accomplish our mission through promoting education, supporting those impacted, and advancing research. From the genesis of our organization in 2008 to supporting our community during a global pandemic, read our journey below.
Reducing maternal and infant mortality attributed to amniotic fluid embolism while helping those impacted navigate paths forward.
Amniotic fluid embolism no longer threatens lives and those with lived experiences thrive.
Over the Years
Founded by AFE survivor, we became the only organization in the world dedicated to Amniotic Fluid Embolism.
World’s foremost AFE experts pledge their support and participation.
Launches website and support groups. Now, site visits reach 40,000 a year and 1,000+ in our support groups.
First fundraiser event sets financial foundation and inspires more events.
Begins presenting AFE education and simulation at large conferences in U.S.
Adopts March 27th as AFE Awareness Day to honor families and lived ones lost to AFE.
Appointed to the California Maternal Quality Care Collaborative (CMQCC) Executive Board, a multi-stakeholder organization founded at Stanford University that leads the development of safety quality standards and improvement efforts to reduce maternal mortality and morbidity in CA.
Launches global AFE Patient Registry. Quickly becomes most comprehensive study of AFE in the world.
Awareness campaign spans the globe reaching 500,000 in over 80 countries.
Appointed to the prestigious Council for Patient Safety in Women’s Health Care at the American College of Obstetricians and Gynecologists which joins partners, subspecialties, and patient organizations together with the goal of improving health care for all women.
Established and published diagnostic criteria for amniotic fluid embolism in research studies in the American Journal of Obstetrics and Gynecology with an extensive multidisciplinary team of experts in maternal fetal medicine, hematology, and cardiology. The criteria have been internationally recognized and cited in more than 100 other publications and studies.
Published paper in European Journal of Obstetrics and Gynecology on reproductive outcomes of women who survived an amniotic fluid embolism.
AFE Foundation Board Member, Stephanie Arnold is the keynote speaker at the Association of Women’s Health, Obstetric and Neonatal Nurses (AWHONN) annual conference with over 2,500 labor and delivery nurses sharing her story and more about our organization.
Established the first of its kind biorepository in the U.S for amniotic fluid embolism specimens at Baylor College of Medicine to advance the research on the syndrome and identify potential new biomarkers aiding in the prediction, prevention, and more efficacious treatment of AFE.
Appointed to the CDC National Partnership to Eliminate Preventable Maternal Mortality.
Led by lobbyist and AFE Survivor Pattie Shea, AFE Foundation board member Diana Masulli, and several other AFE survivors, Connecticut passed the first bill of its kind mandating the CT Department of Public Health provide education on AFE developed by the AFE Foundation to all labor and delivery clinicians and medical students in the state.
Opened our office in Carlsbad, California and hired our second employee.
Co-Founded MoMMA’s Voices, a national coalition of patient organizations and individuals working together to reduce maternal complications in pregnancy and the postpartum period.
Joined into a formal collaboration with the world-renowned Perinatology Research Branch of the National Institutes of Health and Wayne State University expanding our registry and biorepository efforts and expertise.
Published the first extensive manuscript in the American Journal of Obstetrics and Gynecology for Maternal Fetal Medicine on the key findings from the AFE Registry.
Appointed to Maternal Mortality Review Committees in California and Connecticut.
Recommended and helped establish a uniform checklist to aid in the treatment and management of AFE.