Our outreach, education, and research initiatives are undoubtedly bringing us closer to ending AFE.
Families Served Globally
Cases Submitted to the AFE Registry
Prior to the establishment of the AFE Foundation in 2008, families had nowhere to turn for information or support. Similarly, there was limited information and education for clinicians. Research had largely ceased since the late 1990s.
The decision to start the foundation was an easy one; the need was simply too great. Just weeks after its formation, families sought the support groups we created and the world’s top AFE experts joined our board. Months later, our website offered timely and accurate information and helpful guides to assist families through the challenging times after an amniotic fluid embolism.
We have accomplished a great deal since 2008. Our AFE Patient Registry has garnered an international following and collaboration. We have published more than a dozen papers on AFE treatment and management, diagnostic criteria, subsequent pregnancies, risk factors, and how to support patients, family, and staff after a severe maternal event.
We have provided direct education to over 10,000 clinicians across the globe through lectures and panels at Grand Rounds, webinars, and medical society meetings.
More than 1,500 families are engaged in our organization and participate in various support groups, peer outreach programs, and advocacy training opportunities.
Our impact would not be possible without the generosity and engagement of our supporters. While we have much to be proud of, we know there is still a great deal of work to be done. AFE remains unpreventable and poorly understood. Mothers and their babies are still dying. We envision a world free from the devastation of AFE when all moms can experience motherhood.
Beyond the Numbers
Hear what our community has to say about our impact. Visit our page at GreatNonprofits and watch MiLinda’s touching video.
“I suffered an Amniotic Fluid Embolism while delivering my twin babies. I had no idea what it was and personally had never heard of it. I almost died. This foundation has given me support and more importantly it works hard every day to spread awareness and help find a way to stop AFE or at least find a reason behind why it actually happens”. – Heather S.