Amniotic Fluid Embolism Resources
Welcome, we are glad you found us!
If you have landed on this page, we know you have likely arrived with many questions. How? Why? What’s next?
Our organization was created with you in mind. We are here to help you in the hours, days, weeks, and even years ahead. We understand the need to learn more about AFE, access resources to help you navigate your path forward, and connect you to others in our community who share a similar perspective.
Below you will find links to guides, support groups, and other ways to connect to others.
Guides/Resources
Grieving Families
For those grieving the loss of a loved one to assist in the hours, days, weeks, and months after a loss.
AFE Foundation Support Groups
The AFE Foundation has created several online support groups on Facebook for those affected in different ways by AFE. Our groups are moderated and facilitated by trained admins. They are closed groups, meaning members’ posts are only visible to the other members of the group, and not to the public.
Infant Loss
For those who lost a child while also experiencing an amniotic fluid embolism.
AFE Survivors Requiring Hysterectomy
For AFE Survivors that required extracorporeal membrane oxygenation (ECMO).
AFE Survivors Requiring ECMO
For survivors of amniotic fluid embolism (AFE) that required a hysterectomy.
You Are Not Alone
A picture can be worth more than a thousand words. Our interactive map illustrates families affected by AFE across the globe. Using the key below you can search for others who shared a similar experience and request to connect with them. To be added to the map or conenct with others, click here.
PEER SUPPORT ZOOM GROUPS
We offer monthly small group peer support meetings to help connect you with others who share a similar timeline and may be experiencing similar emotions and challenges. These smaller and more intimate groups allow for deeper connection than our standard Facebook Groups and are facilitated by an LCSW experienced in birth trauma and giref. Our current groups meet:
-
- Recent AFE Survivors (1st Thursday of the month at 8 PM EST)
- Grieving Mothers (2nd Thursday of the month at 8 PM EST)
- AFE Survivors 1-5 years (3rd Thursday of the month at 8 PM EST)
- Greiving Families (4th Thursday of the month at 8 PM EST)
- AFE Survivors with Infant Loss (3rd Saturday at 3 PM EST)