The summer of 2011 was on course to be a wonderful time in Mark and Helen Robertson’s lives. They were anxiously awaiting the arrival of their first child, a daughter named Niamh. Their love for Niamh grew more and more each day and they knew she would make...
In the spirit of giving, we are asking for your financial support to continue our mission. With your financial gift, we can further our advocacy and educational activities, as well as, advance our research and patient registry initiatives. To make a one time...
When: May 29, 2011 Where: Long Eaton to Blythe, England Journey for Jules is more than just an event; – it is a physical display of one man’s journey towards healing after losing his fiancé on what should have been one of the happiest days of their life together....
