AFE Research

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Amniotic fluid embolism (AFE) is a rare occurrence making it difficult to study. The AFE Foundation and leading AFE researchers have established the Amniotic Fluid Embolism Registry and Biorepository at the University of Texas Health Science Center at Houston (IRB HSC-MS-21-1004) to allow researchers the ability to advance their knowledge of the condition and develop a means for prevention and treatment.

A patient registry is a place where medical information, family history and other related medical and non-medical information from patients is collected and stored for medical research. This information will be helpful in better understanding individual cases of AFE, commonalities, treatments, as well as learn the long-term health of those who have survived an AFE.

A biorepository is where biological samples, such as blood, tissue, or amniotic fluid, are collected, stored, and cataloged for research purposes related to AFE. These samples serve as critical resources for scientists and medical professionals to study the underlying causes, risk factors, and potential treatments of AFE.