AFE Research

Submit A Patient Case

When you submit a case, you help us gain a deeper understanding of individual cases of AFE and allow us the ability to gather vital information on the efficacy of treatments and the reproductive and long-term health of survivors of AFE. The data also serves as a basis for clinical research. To date, this registry has resulted in 13 publications that describe the clinical findings of typical and atypical forms of AFE, reproductive decisions, recurrence, and proposed diagnostic criteria for AFE.

Please complete the form below. No patient-identifying information is required for its completion. Clinicians can submit the form for the purpose of reporting. The patient and/or family’s consent and paperwork are required to submit a full case. You will receive a follow-up email or call from a research coordinator to provide the next step.