Amniotic Fluid Embolism Research

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One of the primary goals of the AFE Foundation is to spur clinical research on amniotic fluid embolism (AFE). The AFE Foundation has joined into a formal collaboration with Baylor College of Medicine in Houston, Texas to create the first of it’s kind, AFE Patient Registry. This registry will allow for greater visibility into incidence rates, survival rates and commonalities amongst those affected. Additionally, it will provide a comprehensive database that will be used as the basis for clinical research on AFE.

Since AFE is a rare occurrence, each case of AFE holds important and valuable  information. If you or someone you know has suffered an AFE, please consider participating. The registry is open to all patients from the US and abroad and has received IRB and ethics approvals. Compensation will not be provided. YOU DO NOT NEED TO HAVE A COPY OF YOUR MEDICAL RECORDS TO PARTICIPATE

3 EASY Steps to Register:

1. Call  832.826.7451 or Email aferegistry@bcm.edu to request consent forms *

2. Complete 3 forms (all you need is your contact information and where you delivered)

3. Mail or Email completed forms back to Baylor College of Medicine

 

For more questions or more information about the registry, please contact our research coordinator at 832.826.7451 or by email aferegistry@bcm.edu.

If you are a healthcare professional who was involved in an AFE case, we ask you share our information with the patient or family members.

Read more about our registry:

Baylor College of Medicine Press Release

AFE Foundation Patient Registry featured on Front Page of Houston Chronicle.

AFE Foundation Patient Registry lauded as “the most promising research in AFE”  in Journal of Obstetrics & Gynecology

 

* Sample email:

To Whom it May Concern,

I am interested in submitting a case to the AFE Foundation Patient Registry. Please send any necessary forms.

Thank you,

Your Name